October 3rd WE DO NOT DO BORING

Truly never a dull moment in this house. I welcome boring. Actually I would embrace it with two hands and dance around the house with it. Boring is something that we apparently can not do around here. When things happen THEY HAPPEN. Mason had some belly pain two weeks ago. This led us to a doctors office that sent me home telling me it was a cold. Then another doctors office sending us to the ER. The ER making us wait 90 minutes while he was in pain led us to another ER. Which then got him in. Did testing and confirmed he needed surgery ASAP. Mason's bowel had ruptured a very rare occurrence but apparently Mason was born with a condition that led him to have an extra piece on his bowel. This piece became infected and ruptured. No cause. Only cure. SURGERY. The surgery went well Mason was expected to be in the hospital for about 5 days. Unfortunately he developed some breathing complication and got sent to a bigger hospital and hour away. Finally one week from the day it started we finally were able to come home. Mason has been home for a week now and is resting. He is recovering well and will return to school half days next week. Like I said we do not do BORING around here.

How quickly the time passes....

I remember getting up with the boys all night long when they were babies. I remember people telling me to treasure these days because they go by too fast. I remember thinking how slowly the clock was moving at 3am . Now with the boys being 14, 8, and 5 I can't believe how fast time has flown by. I can't believe how fast the nights turned into days and the days into years. I am one week from sending my oldest off to highschool and my youngest off to Kindergarten. I am proof that time really does fly. That kids grow and thjngs change in the ink of an eye. . That before we know it summer becomes fall and all those baby years are officially over. Enjoy them.

Dylan met Mike O'hearn and he was thrilled.

Facing reality.

I took a 4 month break from blogging. I sat down and thought about it and decided I did not want my blog to turn into a medical blog about Dylan and lose sense of the fun, happy, true blog I prefer to use.

With that being said. I am not sure I was right about that. I think since this is true life that unfortunately I have hit a time in my life where it will become a little bit of both. WHY? Because this is our world. Muscular Dystrophy is now our reality. We need to not hide from it, ignore it, or run from it. We must stand up strong and fight it head on. We must remain strong, and happy for our children.

We must make the most of every day. We must pray for a cure but be thankful for each day. We must look into the eyes of our children and remember they are a blessing. We must look into the eyes of Dylan and not pity him because in doing so we will be teaching him to pity himself. Ain't nobody got time for that. ;)

Sometimes you just have to enjoy the simple things in life.....

Eventually you just have to pick yourself back up off the floor.....

Its been six months since Dylan's diagnosis. The world seemed to stop for awhile. Or at least ours did. I saw others living their normal every day lives and wondered how they can just carry on when our world has just been turned upside down. Of course we do not even know most of them but to me it felt like the world had stopped.

Dylan has been made fully aware of his condition. I still know he does not completely understand it. Heck, neither do I most days. We have seen MANY doctors lately and are just trying to adjust to all the newness. He has more good days then bad which is obviously a great thing.

The kids are officially on Thanksgiving break today. Which leads us right into the holiday season. I woke up today and thought to myself. Its time to get back up. Its time to regain control of my life. Its time to get back up off the floor. Swallow our new reality and go forward.

The fact that we have three amazing boys did not change. The fact that we love them unconditionally did not change. The fact that we want them to have the best life possible did not change. So how can you make that happen from the floor?? YOU CAN'T.


So I am standing up today, I made pancakes and bacon for breakfast instead of toast and cereal. We are making cookies and getting into the holiday spirit. Now I will still have days where I ask WHY. I will still have days where my heart breaks for a boy who was dealt this hand. However I will still smile, love , and live with all I have. I will remind him and his brothers every day in some way that they are special. We will enjoy this holiday season.